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    Last Updated: 10/30/2025

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    MediFind found 55 doctor with experience in Cardiofaciocutaneous Syndrome near Grand Rapids, MI. Of these, 51 are Experienced and 4 are Advanced.

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    55 providers found
      Experienced in Cardiofaciocutaneous Syndrome
      Medical Genetics | Pediatrics
      Experienced in Cardiofaciocutaneous Syndrome
      Medical Genetics | Pediatrics

      Spectrum Health Hospitals

      25 Michigan St Ne, Corewell Health Grand Rapi, 
      Grand Rapids, MI 
       (0.2 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Laurie Seaver is a Medical Genetics specialist and a Pediatrics provider in Grand Rapids, Michigan. Dr. Seaver is rated as an Experienced provider by MediFind in the treatment of Cardiofaciocutaneous Syndrome. Her top areas of expertise are Hypotonia, 1p36 Deletion Syndrome, Smith-Magenis Syndrome, and Potocki-Lupski Syndrome. Dr. Seaver is currently accepting new patients.

      Julie A. Conley
      Advanced in Cardiofaciocutaneous Syndrome
      Advanced in Cardiofaciocutaneous Syndrome

      Corewell Health Pediatric Ophthalmology - 35 Michigan St NE

      35 Michigan Street Northeast, Suite 5101, 
      Grand Rapids, MI 
       (0.9 miles away)
      Experience:
      17+ years
      Languages Spoken:
      English

      Julie Conley is a Pediatrics provider in Grand Rapids, Michigan. Dr. Conley has been practicing medicine for over 17 years and is rated as an Advanced provider by MediFind in the treatment of Cardiofaciocutaneous Syndrome. Her top areas of expertise are Strabismus, Legius Syndrome, Esotropia, and RASopathies.

      What does Elite, Distinguished, Advanced, Experienced mean?
      Sarah E. Fahnhorst
      Advanced in Cardiofaciocutaneous Syndrome
      Advanced in Cardiofaciocutaneous Syndrome

      Corewell Health Pediatric Congenital Cardiology - 25 Michigan St NE

      25 Michigan Street Northeast, Suite 4200, 
      Grand Rapids, MI 
       (0.9 miles away)
      Experience:
      13+ years
      Languages Spoken:
      English

      Sarah Fahnhorst is a Cardiologist in Grand Rapids, Michigan. Dr. Fahnhorst has been practicing medicine for over 13 years and is rated as an Advanced provider by MediFind in the treatment of Cardiofaciocutaneous Syndrome. Her top areas of expertise are Double Discordia, Tetralogy of Fallot, Bicuspid Aortic Valve, and Ebstein's Anomaly.

      Learn about our expert tiers
      Stanley C. Sedore
      Advanced in Cardiofaciocutaneous Syndrome
      Pediatric Cardiology
      Advanced in Cardiofaciocutaneous Syndrome
      Pediatric Cardiology

      Corewell Health Pediatric Congenital Cardiology - 25 Michigan St NE

      25 Michigan Street Northeast, Suite 4200, 
      Grand Rapids, MI 
       (0.9 miles away)
      Experience:
      16+ years
      Languages Spoken:
      English
      Accepting New Patients

      Stanley Sedore is a Pediatric Cardiologist in Grand Rapids, Michigan. Dr. Sedore has been practicing medicine for over 16 years and is rated as an Advanced provider by MediFind in the treatment of Cardiofaciocutaneous Syndrome. His top areas of expertise are Familial Dilated Cardiomyopathy, Brugada Syndrome, Postural Orthostatic Tachycardia Syndrome (POTS), and Short QT Syndrome. Dr. Sedore is currently accepting new patients.

      Meghan R. Behrmann
      Advanced in Cardiofaciocutaneous Syndrome
      Advanced in Cardiofaciocutaneous Syndrome

      Corewell Health Pediatric Neurodevelopmental - Grand Rapids

      35 Michigan Street Northeast, Suite 3003, 
      Grand Rapids, MI 
       (0.9 miles away)
      Experience:
      17+ years
      Languages Spoken:
      English
      Accepting New Patients

      Meghan Behrmann is a Pediatrics provider in Grand Rapids, Michigan. Dr. Behrmann has been practicing medicine for over 17 years and is rated as an Advanced provider by MediFind in the treatment of Cardiofaciocutaneous Syndrome. Her top areas of expertise are Autism Spectrum Disorder, Delayed Growth, Cardiofaciocutaneous Syndrome, and Distal 18q Deletion Syndrome. Dr. Behrmann is currently accepting new patients.

      Krista M. Haines
      Experienced in Cardiofaciocutaneous Syndrome
      Experienced in Cardiofaciocutaneous Syndrome

      Corewell Health Grand Rapids Hospitals Neonatology - Helen DeVos Children's

      100 Michigan Street Northeast, Floor 3W, 
      Grand Rapids, MI 
       (0.4 miles away)
      Experience:
      20+ years
      Languages Spoken:
      English

      Krista Haines is a Neonatologist in Grand Rapids, Michigan. Dr. Haines has been practicing medicine for over 20 years and is rated as an Experienced provider by MediFind in the treatment of Cardiofaciocutaneous Syndrome. Her top areas of expertise are Gastroschisis, Atresia of Small Intestine, Omphalocele, and Patent Ductus Arteriosus.

      Nga N. Dinh
      Experienced in Cardiofaciocutaneous Syndrome
      Neonatology
      Experienced in Cardiofaciocutaneous Syndrome
      Neonatology

      Corewell Health Grand Rapids Hospitals Neonatology - Helen DeVos Children's

      100 Michigan Street Northeast, Floor 3W, 
      Grand Rapids, MI 
       (0.4 miles away)
      Experience:
      19+ years
      Languages Spoken:
      English

      Nga Dinh is a Neonatologist in Grand Rapids, Michigan. Dr. Dinh has been practicing medicine for over 19 years and is rated as an Experienced provider by MediFind in the treatment of Cardiofaciocutaneous Syndrome. Her top areas of expertise are Atresia of Small Intestine, Gastroschisis, Tracheoesophageal Fistula, and Patent Ductus Arteriosus.

      John W. Winters
      Experienced in Cardiofaciocutaneous Syndrome
      Experienced in Cardiofaciocutaneous Syndrome

      Corewell Health Pediatric Critical Care (PICU)

      100 Michigan Street Northeast, 
      Grand Rapids, MI 
       (0.4 miles away)
      Experience:
      37+ years
      Languages Spoken:
      English

      John Winters is a Pediatrics provider in Grand Rapids, Michigan. Dr. Winters has been practicing medicine for over 37 years and is rated as an Experienced provider by MediFind in the treatment of Cardiofaciocutaneous Syndrome. His top areas of expertise are Respiratory Syncytial Virus (RSV) Infection, Wildervanck Syndrome, Microcephaly Deafness Syndrome, and Early Infantile Epileptic Encephalopathy.

      Benedict A. Doctor
      Experienced in Cardiofaciocutaneous Syndrome
      Experienced in Cardiofaciocutaneous Syndrome

      Corewell Health Grand Rapids Hospitals Neonatology - Helen DeVos Children's

      100 Michigan Street Northeast, Floor 3W, 
      Grand Rapids, MI 
       (0.4 miles away)
      Experience:
      32+ years
      Languages Spoken:
      English

      Benedict Doctor is a Neonatologist in Grand Rapids, Michigan. Dr. Doctor has been practicing medicine for over 32 years and is rated as an Experienced provider by MediFind in the treatment of Cardiofaciocutaneous Syndrome. His top areas of expertise are Gastroschisis, Atresia of Small Intestine, Omphalocele, and Tracheoesophageal Fistula.

      Daniel S. Knee
      Experienced in Cardiofaciocutaneous Syndrome
      Neonatology
      Experienced in Cardiofaciocutaneous Syndrome
      Neonatology

      Corewell Health Grand Rapids Hospitals Neonatology - Helen DeVos Children's

      100 Michigan Street Northeast, Floor 3W, 
      Grand Rapids, MI 
       (0.4 miles away)
      Experience:
      28+ years
      Languages Spoken:
      English

      Daniel Knee is a Neonatologist in Grand Rapids, Michigan. Dr. Knee has been practicing medicine for over 28 years and is rated as an Experienced provider by MediFind in the treatment of Cardiofaciocutaneous Syndrome. His top areas of expertise are Gastroschisis, Atresia of Small Intestine, Omphalocele, and Wolf-Hirschhorn Syndrome.

      David C. Synhorst
      Experienced in Cardiofaciocutaneous Syndrome
      Experienced in Cardiofaciocutaneous Syndrome

      Corewell Health Pediatric Hospitalists - Grand Rapids

      100 Michigan Street Northeast, Room 280, 
      Grand Rapids, MI 
       (0.4 miles away)
      Experience:
      11+ years
      Languages Spoken:
      English

      David Synhorst is a Pediatrics provider in Grand Rapids, Michigan. Dr. Synhorst has been practicing medicine for over 11 years and is rated as an Experienced provider by MediFind in the treatment of Cardiofaciocutaneous Syndrome. His top areas of expertise are Malnutrition, Respiratory Syncytial Virus (RSV) Infection, Cerebral Hypoxia, and Streptococcal Group A Infection.

      Claudia Nadernejad
      Experienced in Cardiofaciocutaneous Syndrome
      Experienced in Cardiofaciocutaneous Syndrome

      Corewell Health Grand Rapids Hospitals Neonatology - Helen DeVos Children's

      100 Michigan Street Northeast, Floor 3W, 
      Grand Rapids, MI 
       (0.4 miles away)
      Experience:
      25+ years
      Languages Spoken:
      English

      Claudia Nadernejad is a Neonatologist in Grand Rapids, Michigan. Dr. Nadernejad has been practicing medicine for over 25 years and is rated as an Experienced provider by MediFind in the treatment of Cardiofaciocutaneous Syndrome. Her top areas of expertise are Atresia of Small Intestine, Gastroschisis, Omphalocele, and Tracheoesophageal Fistula.

      Jodi K. Garvin
      Experienced in Cardiofaciocutaneous Syndrome
      Neonatology
      Experienced in Cardiofaciocutaneous Syndrome
      Neonatology

      Corewell Health Grand Rapids Hospitals Neonatology - Helen DeVos Children's

      100 Michigan Street Northeast, Floor 3W, 
      Grand Rapids, MI 
       (0.4 miles away)
      Experience:
      13+ years
      Languages Spoken:
      English

      Jodi Garvin is a Neonatologist in Grand Rapids, Michigan. Dr. Garvin has been practicing medicine for over 13 years and is rated as an Experienced provider by MediFind in the treatment of Cardiofaciocutaneous Syndrome. Her top areas of expertise are Gastroschisis, Atresia of Small Intestine, Tracheoesophageal Fistula, and Patent Ductus Arteriosus.

      Megan D. Quist
      Experienced in Cardiofaciocutaneous Syndrome
      Experienced in Cardiofaciocutaneous Syndrome

      Corewell Health Pediatric Neurodevelopmental - Grand Rapids

      35 Michigan Street Northeast, Suite 3003, 
      Grand Rapids, MI 
       (0.9 miles away)
      Experience:
      12+ years
      Languages Spoken:
      English

      Megan Quist is a Pediatrics provider in Grand Rapids, Michigan. Dr. Quist has been practicing medicine for over 12 years and is rated as an Experienced provider by MediFind in the treatment of Cardiofaciocutaneous Syndrome. Her top areas of expertise are Autism Spectrum Disorder, Microcephaly, DiGeorge Syndrome, and Developmental Dysphasia Familial.

      Stephanie-grace A. Raymundo
      Experienced in Cardiofaciocutaneous Syndrome
      Pediatric Cardiology
      Experienced in Cardiofaciocutaneous Syndrome
      Pediatric Cardiology

      Corewell Health Pediatric Congenital Cardiology - 25 Michigan St NE

      25 Michigan Street Northeast, Suite 4200, 
      Grand Rapids, MI 
       (0.9 miles away)
      Experience:
      11+ years
      Languages Spoken:
      English
      Accepting New Patients

      Stephanie-grace Raymundo is a Pediatric Cardiologist in Grand Rapids, Michigan. Dr. Raymundo has been practicing medicine for over 11 years and is rated as an Experienced provider by MediFind in the treatment of Cardiofaciocutaneous Syndrome. Her top areas of expertise are Patent Ductus Arteriosus, Pulmonary Atresia, Ventricular Septal Defects, and Heart Murmurs. Dr. Raymundo is currently accepting new patients.

      Kim G. Lee
      Experienced in Cardiofaciocutaneous Syndrome
      Pediatric Cardiology
      Experienced in Cardiofaciocutaneous Syndrome
      Pediatric Cardiology

      Corewell Health Pediatric Congenital Cardiology - 25 Michigan St NE

      25 Michigan Street Northeast, Suite 4200, 
      Grand Rapids, MI 
       (0.9 miles away)
      Experience:
      35+ years
      Languages Spoken:
      English
      Accepting New Patients

      Kim Lee is a Pediatric Cardiologist in Grand Rapids, Michigan. Dr. Lee has been practicing medicine for over 35 years and is rated as an Experienced provider by MediFind in the treatment of Cardiofaciocutaneous Syndrome. His top areas of expertise are Ventricular Septal Defects, Bicuspid Aortic Valve, Heart Murmurs, and Patent Ductus Arteriosus. Dr. Lee is currently accepting new patients.

      Julie J. Sommerfield
      Experienced in Cardiofaciocutaneous Syndrome
      Pediatric Cardiology
      Experienced in Cardiofaciocutaneous Syndrome
      Pediatric Cardiology

      Corewell Health Pediatric Congenital Cardiology - 25 Michigan St NE

      25 Michigan Street Northeast, Suite 4200, 
      Grand Rapids, MI 
       (0.9 miles away)
      Experience:
      23+ years
      Languages Spoken:
      English
      Accepting New Patients

      Julie Sommerfield is a Pediatric Cardiologist in Grand Rapids, Michigan. Dr. Sommerfield has been practicing medicine for over 23 years and is rated as an Experienced provider by MediFind in the treatment of Cardiofaciocutaneous Syndrome. Her top areas of expertise are Patent Ductus Arteriosus, Cor Triatriatum, Ventricular Septal Defects, and Coronary Artery Fistula. Dr. Sommerfield is currently accepting new patients.

      Brooke E. Geddie
      Experienced in Cardiofaciocutaneous Syndrome
      Experienced in Cardiofaciocutaneous Syndrome

      Corewell Health Pediatric Ophthalmology - 35 Michigan St NE

      35 Michigan Street Northeast, Suite 5101, 
      Grand Rapids, MI 
       (0.9 miles away)
      Experience:
      21+ years
      Languages Spoken:
      English

      Brooke Geddie is a Pediatrics provider in Grand Rapids, Michigan. Dr. Geddie has been practicing medicine for over 21 years and is rated as an Experienced provider by MediFind in the treatment of Cardiofaciocutaneous Syndrome. Her top areas of expertise are Coloboma, Strabismus, Congenital Cataract, Esotropia, and Vitrectomy.

      Christel M. Keefe
      Experienced in Cardiofaciocutaneous Syndrome
      Pediatric Endocrinology | Endocrinology
      Experienced in Cardiofaciocutaneous Syndrome
      Pediatric Endocrinology | Endocrinology

      Corewell Health Pediatric Endocrinology - 35 Michigan St NE

      35 Michigan Street Northeast, Suite 1800, 
      Grand Rapids, MI 
       (0.9 miles away)
      Experience:
      17+ years
      Languages Spoken:
      English
      Accepting New Patients

      Christel Keefe is a Pediatric Endocrinologist and an Endocrinologist in Grand Rapids, Michigan. Dr. Keefe has been practicing medicine for over 17 years and is rated as an Experienced provider by MediFind in the treatment of Cardiofaciocutaneous Syndrome. Her top areas of expertise are Type 1 Diabetes (T1D), Turner Syndrome, Mixed Gonadal Dysgenesis, and Short Stature (Growth Disorders). Dr. Keefe is currently accepting new patients.

      Heather A. Sowinski
      Experienced in Cardiofaciocutaneous Syndrome
      Pediatric Cardiology
      Experienced in Cardiofaciocutaneous Syndrome
      Pediatric Cardiology

      Corewell Health Pediatric Congenital Cardiology - 25 Michigan St NE

      25 Michigan Street Northeast, Suite 4200, 
      Grand Rapids, MI 
       (0.9 miles away)
      Experience:
      18+ years
      Languages Spoken:
      English

      Heather Sowinski is a Pediatric Cardiologist in Grand Rapids, Michigan. Dr. Sowinski has been practicing medicine for over 18 years and is rated as an Experienced provider by MediFind in the treatment of Cardiofaciocutaneous Syndrome. Her top areas of expertise are Turner Syndrome, Mixed Gonadal Dysgenesis, Heart Tumor, and Atrial Myxoma.

      Showing 1-20 of 55

      Last Updated: 10/30/2025

      What is the definition of Cardiofaciocutaneous Syndrome?

      Cardiofaciocutaneous syndrome is a disorder that affects many parts of the body, particularly the heart (cardio-), facial features (facio-), and the skin and hair (cutaneous). People with this condition also have delayed development and intellectual disability, usually ranging from moderate to severe.

      When should I see a Cardiofaciocutaneous Syndrome doctor near Grand Rapids, MI?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Cardiofaciocutaneous Syndrome doctor near Grand Rapids, MI?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Cardiofaciocutaneous Syndrome doctors near Grand Rapids, MI?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Cardiofaciocutaneous Syndrome doctors near Grand Rapids, MI?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Cardiofaciocutaneous Syndrome doctor near Grand Rapids, MI?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Cardiofaciocutaneous Syndrome doctor search results page. 

      Why is it important to get a second opinion from a different Cardiofaciocutaneous Syndrome doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Cardiofaciocutaneous Syndrome doctor near Grand Rapids, MI?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Cardiofaciocutaneous Syndrome doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Cardiofaciocutaneous Syndrome doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Cardiofaciocutaneous Syndrome doctors near Grand Rapids, MI?

      Look for the filter feature on the left side of the Cardiofaciocutaneous Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Cardiofaciocutaneous Syndrome doctor that offers video calls?

      Look for the filter feature on the left-side of the Cardiofaciocutaneous Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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